3 responses to “New Born Screening”

  1. Jaye

    Wow. I re-read your article twice to be sure I was reading it correctly. You dont think the heel prick test should be mandatory??

    Im a mum to 3 little boys with HCU, which is a lot like PKU. If not picked up in the heel prick test, my little ones would probably have suffered awfull side effects, and most certainly at least one of my boys would have died before the age of 2.

    Instead, we know to feed them a low protein diet – basically Vegan – and they are perfectly normally and healthy.

    If given a ‘choice’ about the heel prick test, i may well have chosen not to do it. Instead, it was presented to me as something I HAD to do… thank God…

  2. Lisa Barrett

    I don’t think the heel prick should be mandatory. I think it’s up to everyone to decide for themselves knowing the pro’s and con’s and realising they have to live with every decision they make.

  3. Adrienne

    I think the biggest issue is the lack of informed consent. Too many things at hospitals are shoved under our noses and expected to be signed, without any credible information being presented and explained with them. I’m a law student (no flames please…) and from our experience with the public hospital system i know we weren’t given any information about the heel prick test, just told that it was mandatory.

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Next Meeting
14th July 2010