7 responses to “New Born Screening”

  1. Jaye

    Wow. I re-read your article twice to be sure I was reading it correctly. You dont think the heel prick test should be mandatory??

    Im a mum to 3 little boys with HCU, which is a lot like PKU. If not picked up in the heel prick test, my little ones would probably have suffered awfull side effects, and most certainly at least one of my boys would have died before the age of 2.

    Instead, we know to feed them a low protein diet – basically Vegan – and they are perfectly normally and healthy.

    If given a ‘choice’ about the heel prick test, i may well have chosen not to do it. Instead, it was presented to me as something I HAD to do… thank God…

  2. Lisa Barrett

    I don’t think the heel prick should be mandatory. I think it’s up to everyone to decide for themselves knowing the pro’s and con’s and realising they have to live with every decision they make.

  3. Adrienne

    I think the biggest issue is the lack of informed consent. Too many things at hospitals are shoved under our noses and expected to be signed, without any credible information being presented and explained with them. I’m a law student (no flames please…) and from our experience with the public hospital system i know we weren’t given any information about the heel prick test, just told that it was mandatory.

  4. Mira

    It should be possible to separate the screening part of the test from the long term storage.

    I’m ok with screening, but NOT ok with long term storage and re-use of my childrens genetic data without my (or their) knowledge or specific consent. There is no inferred consent to long term storage and further use inherent in the initial screening test anyway, but nobody has thought about the legal ramifications of that.. yet!

  5. LeTara

    I just found this from a website regarding still birth… does this mean that we can avoid the heel stick if you use the placental cord blood immediately? .. here most homebirthers wait 6 days to test though…
    “Guthrie card. Where permission for an autopsy has been declined, parents should be asked if blood can be taken for the Newborn Screening Guthrie Card that is requested for all babies in Australia. This blood could be drawn from a heel prick or from the cut end of the umbilical cord of the placenta”

  6. nicole rogers

    In the US they do a lot of tests and tx that are not warranted. The PKU is a good example. They do it in the hospital but as Lisa pointed out, it is not accurate until the baby is ingesting food. But they still do it to cover their a**. They also worry that the mom wont bring baby in at 2 weeks to have the test done. It is like the practice of abx in the eyes of every newborn at birth. Done to all to protect a few. If you are not a high risk mom, why subject your baby to that? You can decline it, as I did, but they do not like it. Actually made me bring silver nitrate home with me (what they used to use). Immunizations are the same. Rather than space them out so that baby is not bombarded with tons of immunizations at once, they will give a baby up to 4 injections, some of which contain more than one immunization in the shot. This is bad not only because hello, who wants 4 shots? But also because their immune systems go into overdrive trying to deal with all of that at once. So while I am pro-PKU and pro- immunizations, I don’t like the way we are all forced into complying because of a few dead beat parents that do not follow up with doc appointments. However, it is important for me to point out that none of these tests or immunizations are mandated in the states. Parents always can decline them. Many do decline but then you run into issues with starting school-need immunizations to start-but can get around it if you state religious beliefs.